In a very poor house, not far from the Shalom Home compresnsorio of Mitunguu, he lives a family, father and mother (unfortunately addicted to alcohol) with 7 children, 2 girls and 5 boys. So far nothing unusual, you say, except that, in this family, there is a very serious disease that aggravates the situation in itself already very critical.
This is muscular dystrophy, genetic disorder linked to the X chromosome that affects almost exclusively males, while females can be carriers.
Disease which surely the parents of those seven brothers were not aware of, but which have come to know that their sons gradually grew and lost the ability to stand on one leg and then also the strength in the arms.
About a month ago Father Francis came, coincidentally, aware of this situation and went to pay them a visit and found the 4 males of 16.12.11 and 18, left to themselves, lying on the ground on simple mats, unable to move independently for any need, and forced to depend 100% just by not always present because parents addicted to something else.
All this with the knowledge and lucidity of a normal person! Yes, because their illness by no means affects their intelligence and allows them to realize every day of their situation.
Brayan the youngest is 7 years old, is fine for now the disease has not yet manifested.
After what I saw on that visit Father Francis has virtually decided to host them as soon as possible Shalom.
He informed the relevant authorities and its intentions, brought them to the hospital for advice and guidance on how to look after them and knowing what support to give them, in addition to the necessity of having suffered wheelchairs.
Upon my arrival, we had just arrived at Shalom they, too, were accommodated in two rooms with bathroom and shower, dedicated only to them, in the house built in his time for the guests right next to mine. With them there and also one of the two sisters Emily, because Karim, born of the ulima erases only three years remained with their parents.
Here everyone is happy to have them with them, often the boys and older girls, are racing to look after them and follow them in school and not just activities. This is very nice and very educational mostly .They are also followed by a physiotherapist nurse who is working every day for half a day and a girl who is doing an internship here with us as a social worker.
Unfortunately, the bad news is that you can do nothing to heal them ... there is no cure currently available.